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Epilepsy Patients' Conceptions of Epilepsy as a Phenomenon
Swedish National Defence College, Department of Leadership and Management (ILM).ORCID iD: 0000-0001-8274-6065
2009 (English)In: Journal of Neuroscience Nursing, ISSN 0888-0395, Vol. 41, no 4, 201-210 p.Article in journal (Refereed) Published
Abstract [en]

This study addressed epilepsy patients' conceptions of epilepsy as a phenomenon and emotions related to those conceptions. Nineteen outpatients were interviewed, and data were analyzed according to the phenomenographical methodology. Patients described epilepsy in six qualitatively different ways: Epilepsy is (a) an illness related to physical disturbances, (b) a condition related to physical disturbances, (c) a mental disturbance related to lack of mental capacity, (d) a handicap related to psychological and/or social aspects, (e) an identity related to being an epileptic, and (f) a punishment. The emotions confidence, happiness, hope, and annoyance were related to epilepsy as an illness or a condition, whereas shame, fear, sorrow, and guilt were related to the other four categories. This study indicated that, to patients, the phenomenon of epilepsy is above all a psychosocial nature and in that dimension closely related to negative emotions.

Place, publisher, year, edition, pages
Philadelphia, USA: Wolters Kluwer Health , 2009. Vol. 41, no 4, 201-210 p.
National Category
Medical and Health Sciences
Research subject
Ledarskap under påfrestande förhållanden
Identifiers
URN: urn:nbn:se:fhs:diva-359DOI: 10.1097/JNN.0b013e3181aaaa75ISI: 000271576700006OAI: oai:DiVA.org:fhs-359DiVA: diva2:618694
Available from: 2010-02-23 Created: 2010-02-23 Last updated: 2017-01-04Bibliographically approved

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